I've been
off on the sick for two months now – yep, as of tomorrow it's a full sixth of a
calendar since my skull was jemmied open and the lurking horror removed – and people
keep asking me how I fill my days.
The answer
is 'with very little'. But that seems to be working, which surprises no-one
more than me.
Boredom, or
the fear of it, is what had initially bothered me the most about having all
this time on my hands. I find it all too easy to slip into that Sunday
afternoon torpor Douglas Adams described as "the long, dark tea-time of
the soul", where ennui and inertia combine into urrggh. I had a few months
of unemployment nearly ten years ago which did me no good at all on that front
– you start to get into pointless, time-consuming routines; you actually start
to regard going to the shop or signing on as What You're Doing That Day – and I
was a bit worried about being sucked back into that.
But back then I
was completely healthy, just unoccupied, and frustrated because a complicated
mortgage insurance policy was stopping me from doing casual work, and my
attempts to get back into the meedja full-time seemed to be constantly met with
accusations of being either over-qualified or out of touch because I'd spent so
long working in that dead-end, flash-in-the-pan online thing. Seriously, people
actually told me that. Not a good time, for me or the industry.
This is
different. I am, in a sense, still healthy insofar as I have no side-effects
from my actual condition, or the hole it has left behind. But there are effects
from the treatment, and they take a kind of a toll.
If I fill
my time with little jobs like this blog, reading, and messing about with
domestic tech projects, I toddle along fine and keep well away from the sucking
mire of daytime TV. But I'm also aware that my energy lasts for about two hours
at a stint before I have to eat and sleep, and that if I make the mistake of
standing about in the cold or doing something strenuous, I'm going to be a bit
gubbed.
Most days, first
thing, I feel perfectly capable of going in to work. It's just that while I can
sit here on my couch and batter away at my laptop, then nod off for a bit, that
sort of behaviour doesn't go well in an open-plan office. Anyway, I still have
daily hospital appointments, with the attendant public transport crawl across
the city because the DVLA won't let me drive while I've got a bit of brain
missing, and that's tiring in itself.
So the days
fill themselves up satisfyingly with a pattern of pottering, sleeping and going
to hospital, to the extent that I've breezed past the half-way mark in my
treatment, at least this phase of it, without much drag at all. Doesn't time
fly when you're enjoying yourself?
It all
seems to be going as expected, too, which is nice.
My platelet
count is stable, I'm pleased to say, because that tends to drop on this chemo
and I'm very keen on not doing any more bleeding than is absolutely necessary.
People do seem to want quite a lot of my blood on a fairly regular basis just
now, and it's nice to know I can still close up again without all that messy
spurting.
I'm losing
even more hair, though, which is rubbish. I mentioned in my last entry that the
patch I had only just regrown post-surgery had decided it was giving up on its
comeback tour of the side of my head, but the rest of my right side is now also succumbing to musical differences. Annoyingly, it seems to be the black ones which are
bailing out first; the greys are hanging on in there with the grim
determination of a busload of pensioners in heavy traffic – a little extra
memento mori, like I needed another one.
I have just
over two weeks of daily chemo and five-days-a-week head-zapping to get through,
plus three more Tuesday blood-lettings including an itchy vaccine-trial jag
lined up romantically for Valentine's Day, then I get a break from all things
hospital-y until mid-March.
I'm told I
can expect to be thoroughly knackered for a couple of weeks after the
death-rays stop, and that it might not be immediately afterwards – apparently
there's a cumulative effect of the radiation that can kick in straight away or some
time later, which I'm trying not to think of in terms of cooking. But, all
going well, I hope to be back at the typeface from early March. There will
still be a need to pop in to feed the Beatson's in-house vampire and
occasionally go on a week of adjuvant chemo (which I should be able to work
through), and there will be scans. But life should be back to more-or-less
normal.
Until then,
this is all really quite bearable. I'm feeling generally pretty good.
If you
enjoy this blog, please consider donating some money to The Beatson, Glasgow 's cutting-edge
non-surgical cancer treatment centre. I'd be delighted if every reader gave £1
– you can do this very easily by texting MKBY91 £1 to 70070 from
any UK mobile
network. If you'd like to give more you can change the amount or use the blue
puff to the top left of www.puregns.co.uk
which links to my JustGiving page. That also works for readers outside the UK .
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